My mom and dad are really excited about this new pump. My mom says that this is why we support the Juvenile Diabetes Research Foundation. Hopefully I’ll be eligible for a pump sometime this year!
If you love Indiana Jones, then you need to see this exhibit at the Discovery Science Center. It’s awesome!
I had a great Christmas this year!
It all started with a trip to a local boys home with my Cub Scout Pack to spread some holiday cheer. We brought presents, sweets and friendship. I hope they liked their gifts. You can barely see me and my sister outside of the home. It had amazing light decorations.
Next was our last trip to Disneyland with our year-long passes. I hope my dad renews for next year!
Mrs. Claus was very nice. She even asked what we wanted for Christmas just like Santa!
GRANDMA’S HOUSE! My Grandma and Grandpa Gil live in Lake Isabella, which is 3 hours away, so my parents make sure we are on the road between meals (due to my diabetes). My mom knew my Uncle Kirk and Uncle Bob were making shrimp for dinner so we picked up McDonald’s along the way. I don’t eat anything that swims.
Grandma’s house is all about Family LOVE, presents and lots of dogs…
From left to right: Slick (Uncle Bob & Uncle Kirk’s Dog), Sara (Grandma & Grandpa Gil’s Dog), Sophie (Grandma & Grandpa Gil’s dog), Trixie (Uncle Bob and Uncle Kirk’s dog)…my dog Buster stayed home. He doesn’t play well with others.
DUCK DYNASTY! How does this next category fit into my holiday? Well, me, my sister and my dad discovered this crazy show and watched a ton of episodes this month. My sister Alex and I made this for my dad for Christmas. Can you guess who doesn’t belong?
Finally, we took a trip to the Mission Inn in Riverside to see the Festival of Lights. It was cold, but we had fun. There were so many lights! We stopped at Casey’s Cupcakes to pick up some treats for dessert and then headed over to CPK for dinner. It was a great night!
Recently during an evening holiday event someone asked me why I wasn’t drinking hot chocolate with everyone else. My quick response to this question was, “It’s because of my diabetes”, but there is more to it than that. Actually, as a Type 1 Diabetic, I can eat anything you can eat, the only difference is I need to count my carbs and make sure I’m given enough insulin to account for those carbs. All my “treats” are added to my well balanced meals and I am given a shot for the number of carbs I am eating at that time. If I want to drink hot chocolate I can, but I’d need to have insulin. So before you worry about me eating a cookie with my Christmas dinner, or a cupcake at a birthday party, my parents and my insulin shots have got me covered.
By the way, do you know what the real reason why I wasn’t drinking hot chocolate? I don’t like my chocolate milk hot!
Today I had my first doctor’s appointment since my diagnosis. My endocrinologist (doctor who specializes in imbalances including diabetes) said my parents and I are doing a great job taking care of my diabetes. My numbers have been good, but I am still in the “honeymoon” phase, which means my body is still producing a little bit of insulin so I’m not ready for an insulin pump.
The good thing about the appointment was I got out of school and played on my iTouch the whole time. The bad thing about the appointment was that my doctor said I need to inject my insulin in my tummy more often. Blah!
It’s been 60 days since I was diagnosed at Loma Linda Medical Center with Type 1 Diabetes. When I first arrived at the hospital, I didn’t feel so good. This is me at only 50 pounds, dehydrated and sleepy.
But only after a few days of insulin and fluids I was feeling better and could even sit up in my bed to play Wii.
Now that I have more energy and gained back the weight I lost, I feel 100% better! I can’t believe it has all ready been 60 days since my diagnosis. What is even harder to believe is that I have had 240 insulin shots since then. That’s a lot of needles!
Yesterday we went to Disneyland and stayed for 12 hours! That’s a lot of work for my mom. She does not travel light:
This backpack has a cooler on the bottom to hold my insulin, which must be kept cool at all times. She also has my blood glucose monitor, emergency glucose kit, needles, bandaids, lancets, water, juices, snacks and my lunch that has been “carb counted”. Plus she has to carry her stuff and a camera so she can take this year’s Christmas card picture on the Disneyland sleigh.
We’re here! CarsLand is all decorated for Christmas. Even Mater:
While we are having fun I need to check my blood sugar level every two hours. Because of all the walking my levels can get low. Today it was like a roller coaster ride…up and down. My lowest was 60 and my highest was 172. After my 60 reading my mom was crazy nervous and asked me every 20 minutes how I was feeling. I feel great! We are at Disneyland!
Before we can have lunch, I have to check my levels and get an insulin shot. Luckily, Disneyland and California Adventure have first aid stations that look like hospitals. It’s a lot more comfortable than getting a shot in a bathroom stall.
Here we are at the picnic area outside of Disneyland. My mom was already tired and wanting to take a nap, but we were ready for more! (my sister is always on her phone)
Because of all the walking my mom let me have extra carbs: popcorn and even chocolate! I try to keep a good attitude about my new way of eating. I know what I can have and what I can’t have. My parents always try to work in sweets for me on the weekends with my meals. That’s just the way my life is now. I try not to let things tempt me, but this was just too much!
Kidding! It wasn’t even real : )
It’s been a long day and my mom is ready to go home. She bought a gingerbread latte at the new Starbucks at California Adventure, and we took one last photo with Mickey. It was a great day!
Being sick is no fun. Having diabetes and being sick can be a challenge. Having the flu can raise my blood sugar level so I have to check my levels every two hours, and test my urine for ketones twice a day. So far this flu hasn’t been too terrible, but because I also have asthma, my parents worry about pneumonia. At least I’m at home and not in the hospital!
It’s a weekday, which means SCHOOL. Everyday starts the same: wash hands, check blood sugar level, get ready for a shot. I prick my finger with a lancet and squeeze until I get a bubble of blood. The glucose monitor tells me my sugar level. If I am in the 100’s, my mom is happy.
It’s time for breakfast, but first my mom has to count the carbohydrates in my meal . She uses the total number of carb grams and my blood sugar reading to calculate how much insulin I need . I prep my leg, arm or tummy with an alcohol swab and wait for the injection. Sometimes if the needle moves a bit, it hurts, but after already having 120 shots since I was diagnosed just a month ago, I’m getting use to the pain.
Now, I’m off to school. My mom packs my lunch with a note for the nurse that lets her know the number of carbs I’m going to eat. She also packs a snack that has no more than 5 grams of carbs, plus a protein. In two hours I need to go to the health clerk so I can check my blood sugar levels again. If my number is too high I need to drink water. If it’s too low, I need a carb to bring it back up. The nurse at school has all my medicines, supplies, juices, waters and snacks.
During the day I need to remind myself to let my teacher know if I have a headache or feel dizzy (my sugar level is too low), or if I am having trouble reading because of blurry vision (my blood sugar level is too high). If I have any problems, I need to go visit the nurse and get out the lancet.
Lunchtime means another visit to the school nurse for a blood sugar check and a shot of insulin. I don’t use a syringe anymore. Now I use an insulin pen . All of my readings are recorded and sent home with me every day. My mom is always anxious to see “my numbers”.
Two hours after lunch and its back to the nurse’s office again to check my sugar level. If I have PE that day I need to remind myself to let my teacher know if I feel tired or sluggish. Strenuous exercise can affect your blood sugar levels.
When I get home I can have a snack, but it can’t be just anything I want. The snack has to include a small carb and a protein . Gone are the days that I can reach into an M&M’s jar anytime I want. All my snacks and meals have to be balanced and all the carbs must be counted.
My dinner routine is the same as my other two meals. I check my blood sugar level, my mom counts my carbs, and I am given a shot of insulin before I can eat a bite. I can have sweets once in a while but it has to be eaten with a meal and the grams of sugar need to be no more than 1/3rd of the total grams of carbs.
I can’t take a shower until an hour after I have an insulin injection. The heat from the shower can affect the insulin and make my blood sugar levels dip drastically. After my shower I have another snack of a carb and a protein. My favorite snack is a low-calorie rice cake with peanut butter.
Before I go to bed I check my blood sugar level again. This is the sixth time I have pricked my finger today. My dad gives me my 24-hour slow acting insulin shot. He tries hard to be careful with the needle and not hurt me, but he needs more practice. If my number is low my parents check my sugar level again at 2:00am. Sometimes I sleep right through it.
In the morning, yeah, you guessed it, I start all over again. My parents have told me that someday everything will be much easier. I won’t have to check my levels as much, and they hope I will be able to wear a pump that will eliminate my four daily shots. My doctors have told me that they WILL find a cure for Type 1 Diabetes in the future. That is why mom and I have started this blog…we hope we have opened your minds to my daily “normal” routine and you will help the Juvenile Diabetes Reseach Foundation find a cure by sponsorinmg my JDRF Walk. Please see the JDRF page on this blog. Thank you!