Only a week and a half left of school and I’ll be on summer vacation! Unfortunately my Type 1 Diabetes never takes a break. Sometimes I have easy days with no surprises, and other days I am really working hard to keep my glucose readings just right…
This week was a busy one. I had Open House at school, so I had to rush home to get my homework complete and ate an early dinner to make it to the event on time. My mom built in enough insulin to cover for shaved ice that was going to be sold at the Open House. Sometimes trying to figure out how many carbs are in something that you haven’t made yourself is tricky. Exactly how much syrup did they add to the ice? Did I receive too much insulin or too little? It’s always hard to estimate.
Then there are my super busy days when I am moving non-stop. On those days I start my homework right after I get home from school, eat an early dinner, go to drum lessons, come home and take a shower, go directly to a Boy Scout meeting, and then I’m back home just in time to get my long-acting insulin shot. Usually on days like this I tend to run low (my LOW glucose readings range from 40-70—and I’ve never had a reading below 40). Of course I always carry my diabetes kit with me—no matter what. My mom says as long as I plan for the day and have my medical kit with me, with snacks to help deal with my lows, I can be as healthy as anyone else.
And now it’s time to plan for the next few weeks. I’m really excited about a year-end field trip with all-you-can-eat pizza and non-stop videogame fun, and a summer vacation beginning with a trip to Walt Disney World. I’ve got my diabetes kit and I’m ready to go!
Today is World Diabetes Day and I will be selling these awareness bands from now until April 2015. All money will be donated to JDRF. The bands come in two sizes (adult and youth) and are $5 each. I hope you will help me raise money for research to find a cure for diabetes. ~Jonathan
There are a lot of myths out there regarding Type 1 Diabetes. So since November is Diabetes Awareness Month my mom and I thought it would be a good idea to share some facts about T1D. You can find these facts and other information about T1D at:
Type 1 diabetes (T1D) is an autoimmune disease in which a person’s pancreas stops producing insulin, a hormone that enables people to get energy from food. It occurs when the body’s immune system attacks and destroys the insulin-producing cells in the pancreas, called beta cells. While its causes are not yet entirely understood, scientists believe that both genetic factors and environmental triggers are involved. Its onset has nothing to do with diet or lifestyle. There is nothing you can do to prevent T1D, and—at present—nothing you can do to get rid of it.
Insulin Is Not a Cure
While insulin injections or infusion allow a person with T1D to stay alive, they do not cure the disease, nor do they necessarily prevent the possibility of the disease’s serious effects, which may include: kidney failure, blindness, nerve damage, heart attack, stroke, and pregnancy complications.
The Outlook for Treatments and a Cure
Although T1D is a serious and difficult disease, treatment options are improving all the time, and people with T1D can lead full and active lives. JDRF is driving research to progressively remove the impact of the disease from people’s lives until we ultimately achieve a world without T1D.
Today is Halloween and the end of October, but it’s also the beginning of my third year living with Type 1 Diabetes. Since my diagnosis in October, 2012, I have had over 3,000 insulin shots and about twice as many finger pricks. Tonight my mom talked to me about experimental therapy that JDRF is helping to fund that could someday help Type 1 diabetics like me. I hope it works, but for now my parents and I work hard to keep my glucose numbers in check and my A1C levels between 6 and 7. Of course I have my ups and downs, but I am healthy and happy and can’t wait to go trick-or-treating! Happy Halloween!
So it’s October, and I’ve been in middle school for three months now. The difference between middle and elementary school is that the food is better in middle school. Homework is a lot harder and there is a lot more. Since I have PE, I have to check my numbers twice a day at school. So far I am having fun and my favorite subject is science and PE. This is Middle School:
This year I am looking to raise funds for the Juvenile Diabetes Research Foundation’s Walk to Cure Diabetes, held April 27, 2014, in Ontario, California. My family and I will not be participating in the actual Walk this year, but we will still be making a pledge. If you would like to contribute to my fundraising efforts you can help by purchasing grocery totes with my original artwork for $5.00 each. It’s easy…
- Log-on to my website: www.dinopetesjohn.com
- Select the JDRF page
- Select Click this link to the JDRF website
- Select the orange Donate button (upper right)
- Select the blue Donate Now button (middle)
- Select the blue Donate to a Walker button
- First Name: Jonathan; Last Name: Torres; State: California
- Select my name and donate!
The totes are like the type you would buy at the supermarket to use instead of paper or plastic bags. They are large (14 ½ x 13 x 9), with a sturdy plastic board bottom to handle large loads. Your bags will be hand delivered or mailed to you via USPS. All monies collected for the totes go directly to JDRF. I hope you can help!
Thank you for your support.
Oh, yeah…a special thanks to my mom’s book club, The Mindful Reader’s Book Club, for donating their 2013 member dues to my cause. JDRF is the only organization with a strategic research plan to end T1D. With generous contributions, like those from the Mindful Reader’s, Type 1 becomes Type none. Thanks again Mindful Reader’s!
Last night at our Cub Scout Pack Meeting I bridged from the Webelos to a Boy Scout!
My mom made brownies for me tonight. I love them! I don’t always get this kind of a treat because it’s full of sugary carbs; almost 85 grams! That’s 6 units of insulin for me. Normally my entire meal is about 6 units. Sometimes my Type 1 Diabetes is a pain because I have to check my glucose numbers before I eat each meal, and I count every carb that I eat before I put anything in my mouth. But, my mom tries hard to make me feel like I’m a normal 11 year old that gets to eat what I want without thinking about carbs. I love brownies!
Ever wonder what it’s like to have Type 1 Diabetes? Take the T1D for a day text challenge: